On Thursday morning during rounds I was sleeping when the Dr’s came in my room to check on me. I was immediately asked if I wanted to go home “yes of course” was my response I looked across the room to see Lisa, she was not there. I was sure I was dreaming. The doctors tracked her down and got her back in the room, and I told her we could go home.
Well, after a long day of waiting and processing we did not leave the hospital until 8:30 pm. This was absolutely annoying and we feel unacceptable. We will be contacting management.
We had a rough two weeks, the Hi dose chemo seemed to go in fine with minimal effects. The Stem cell transplant was a minimal adventure and painless, the days immediately following were filled with minimal discomfort. Then came Thursday night and thats when the “misery days” began. I would refer to these days as the “break down days”. I was broken to the core. I felt like the lowest of lows (numbers and counts were rock bottom) and was in so much pain daily and discomfort I wanted no visitors, no wife in room. I wanted to be pain free. I wanted to get out. I was very depressed, because nothing was working to make me feel better. I developed a series of fevers, and a particularly painful infection which lets just say, was is a pretty big pain in the ass to deal with. This is actually why I feel we were discharged, they could not fix me so hopefully my numbers go up and I heal.
I have to say thanks to Alex Hamilton Smith from Oxnard Fire. He helped out with transportation this week and when my kids were able to visit, he took them home for us. He was in town for a class and came. Thank you so much it was such a huge help! Also had a few visits from Dad.
We return to repeat the process (hopefully not all the bad parts) and go from there. I will go back to start 3 days of Hi Dose chemo on either 10/30 or 10/31. I will take visitors anytime up to 11/4 after that I will be in lock down and not really be wanting to see or talk to anyone for a while. We appreciate the prayers and support. Now just because I don’t want to see anyone after Wednesday, don’t forget about my rockstar, Lisa. She is always available for lunch or dinner, and since she has in and out privileges.